Associate Director, Disease Monitoring Programs (Metabolic)

Position Summary:

ultrainnovative – Tackle rare and dynamic challenges

The Associate Director (AD) of Disease Monitoring Programs (DMPs) is a visible leadership role accountable for the strategic planning and oversight for one or more assigned DMPs. DMPs are a novel approach to GCP-compliant long-term data collection for rare diseases from pre-approval through post marketing. The AD will collaborate with other functional leaders at both tactical and strategic levels.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

1. Process optimization and execution in providing real world evidence to key stakeholders including patients, providers, researchers, and patient advocacy groups